About Me

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Mommy to lego and minecraft obsessed little boy and twin girls who love dressing in tutus or princess gowns and trying on Mom's makeup. All 3 of my kids have their special talents and strengths and their unique challenges. Autism, Apraxia, Hypotonia, Anxiety, Sensory Processing, Receptive Language Disorder, and IEPs are all a part of the language spoken in this house! Always on the go to one therapy or play date to another support group meeting. . .

Friday, January 18, 2013

Perfect World


In a perfect world:

I could afford to send my kids to the perfect pre-school that fits their needs- one that integrates so my kids have a chance to play with “normal” children, a place that provides play centered enrichment programs, where sensory issues aren’t deemed behavioral outbursts, where my child isn’t left sidelined while the others play, where the ratio was 3:1 and not 12:2.

 Everyone would have the best education and therapies available, regardless of income or lack of income. I could afford to work so that I could send my kids off to these great schools without fighting with Elwyn, reliable trustworthy daycare wouldn’t be so expensive, therapies would occur in school as stated.  IEP, arbitration, IDEA, all those other acronyms would just be common sense and not a long complicated process where you need a lawyer or advocate and countless meetings.

I wouldn’t worry about safety or need cameras in buses or classrooms. I wouldn’t worry about bullying, about abuse, about strange women coming into the classroom and kidnapping my child (oh yes, it did, right in Philly this week) or worry about someone showing up with a weapon forcing a lockdown at school   (nearby county also this week)
In a perfect world my kids wouldn’t need therapies and what not.  And this blog wouldn’t exist. SIGH. Would be nice.

Friday, January 11, 2013

Could be worse. . .

OT for A today. After OT I felt like a failure of a mom. I know the OT didn't mean to, but after that session I was depressed and just in a horrid place. Took the kids up for circle time/reading time and then naptime. Thankfully everyone went to sleep so I had some downtime. It was bliss. I didn't make any calls or read any notes or even check Facebook. I just didn't have it in me to read anything more Autismy or Special Needs. Gasp! Sorry Facebook ASD friends. I didn't want to read about my mom club's happenings. Double Gasp! I was really down. Clearly! Any day I don't want to chat with my mom's club you know it's not a happy day!

Then naptime is over. That quickly? I may have whimpered in protest, I won't lie. It'll be ok 2 hours until my hubby gets home, it'll be ok. Well the girls cried on and off again for the majority of those 2 hours, got me why. JD was manic hyper for those same 2 hours. At one point all 3 were back in their rooms crying it out while I paid the pizza delivery guy. Hey, no judgement! While I'm setting the table for our takeout meal, the girls are alternating between crying, whining, and clinging to me- this was how the conversation went;

JD: I want to watch a MOVIE NOW!
Me: You yell at me one more time kiddo and you'll spend the next 2 hours in your room with no tv, no toys, no mommy.
JD: No! Movie. (jumping, running, bouncing, giggling manically)
Me: Can you please be quiet? It's quiet time.
JD: SShhhh! SSH! QUIET! (finger over mouth)
Me: JD, please baby, 2 seconds of closed mouth and quiet. please?
JD: (in an exaggerated loud whisper) Sssh, mommy's gonna lose it, quiet sissies! (giggle) Sssh be QUIET! (giggling)
I looked over and he's shushing his sisters, as he's running around the 1st floor with a toy shopping cart running over his poor sisters who are crying because he's 1) stolen their cart 2) run them over with said cart. His eyes are laughing and he's got a big wide grin on his face as he exaggerates to be quiet.

This is the boy who a year ago wouldn't speak. What he did speak wasn't readily understood. Now I can't shut him up. And then my inner voice said, be thankful for what you have. Be thankful. It could be worse. Slow down and appreciate it. So I did. I gave up trying to finish the laundry, trying to clean the clutter. I don't even know what I was doing that was so important. I sat down and started laughing. Then I ended up crying on the sofa. Damned OT. I was having a good day until she came and gave me her feedback on some of Apple's eating "issues". My boy and girls came over and hugged me and that was the extent of my crying fit.

Like my husband said earlier tonight, it could be worse. I am thankful for how good we have it. 2 of my kids struggle with what most parents take for granted. My 21 month old baby said "Cat" very clearly yesterday. Today she said something that sounded like "There you are" and I celebrate the speech progress. She gained a pound and I celebrate that progress. My son is using proper pronouns for the first time ever, he sat for a complete 30 minutes of therapy session-- sat. Unheard of. I celebrate that!

But dammit, I hate that we have to celebrate these milestones, I wish we didn't need the damn therapies and evals and what have yous. I wish they were perfectly dare I say it, normal. I wish we weren't "special needs". Again, my husband is a freaking wise man-- it could be worse. Indeed, it could. My daddy, another wise man perhaps said it best, "he's [JD] is doing well. You're doing ok." And perhaps the best validation and the one I need to hear the most, "I love you lots mommy, I'm sorry I hit you. Don't be sad. Everything is going to be okay."-- JD.  Love that boy so much.